Saturday, April 11, 2009

New Guinness World Record made!

This email just came to my inbox from the online Brain Tumor support group I am part of. Have to post it to my blog because a new world record was made in the name of Brain Tumor awareness! Make sure you click on the link to see a short video of all of the candles that were lit. SO exciting. :) - Jeanie

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Last night Miles For Hope along with its many supports broke the Guinness world record for the largest candlelight vigil! All in the name of brain tumor awareness.

The OLD record was 1000 and although it was close, at one point I thought we fell just short, we broke it with 1049 candles lit! It was truly an amazing event. Bob and I along with Dr Liau and her family, our very own Drew, and other guests were in the balcony of the suite and overlooked the stadium, it was moving to overlook the sea of candles lit, all in hopes of finding a cure for brain tumors!

We want to thank everyone who attended and supported us to make this event possible! We also wanted to thank Kris for bringing the hidden under our hats display, as always it was moving and well received.


Barb
Join us in our efforts http://www.milesforhope.org/
w/o Bob Mixed Oligoastrocytoma Grade III
dx 5/16/04 Oligo II Right Occipital
MRI 6/13/05 showed growth 70% resection 9/12/05 Dr Liau UCLA
MRI 11/12/07 showed growth, now growing into Temporal & Parital Lobes
Started Temodar 5/23 protocol on 1/11/08 - 4 cycles completed
MRI 5/13/08 Showed 4.3 ccm reduction!
Complete resection 5/15/08
Pathology showed tumor now Mixed Oligoastrocytoma Grade III
Qualified for Brain Tumor Vaccine Trial with Dr Liau at UCLA
Starting trial approx 6/9/08

Doing:
-Kytril for nausea
-Organic Juicing Daily
-White Tea
-Focusing on Super Foods
-Exercise
-Plenty of rest

m/o Christopher dx 5/14/05 Cavernous Hemangeoma Left Cerebellum
Complete resection Dr Frazee UCLA 9/9/05
www.caringbridge.com/visit/bobchris

http://www.mav-inc.com/Vig/V2-Flash.html

"Be kinder than necessary,
for everyone you meet is fighting some kind of battle."

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